Promoting wellbeing in persons with disabilities

Article Sidebar

Requires Subscription or Fee PDF (USD 25)
Published: Mar 31, 2012
DOI: https://doi.org/10.5750/ijpcm.v2i1.176
Keywords:
Disability mental capital person-centered care prevention promotion social inclusion recovery wellbeing

Main Article Content

Luis Salvador-Carulla
University of Cadiz; and Spanish Association for Research on Healthy Ageing (AECES)
Mencia Ruiz
Asociacion PSICOST, Jerez, Spain
Javier E. Saavedra
Department of Medical Clinics, Section of Psychiatry and Mental Health, Universidad Peruana Cayetano Heredia and Director Ejecutivo, Oficina de Apoyo a la Investigación y Docencia Especializada Instituto Nacional de Salud Mental, Lima (Peru)

Abstract

Person-centered care plays a critical role in the promotion of wellbeing in persons with disabilities. The United Nations Convention on the Rights of Persons with Disabilities states that services should be provided in the community. The 2011 World Report on Persons with Disabilities indicates that person-centered services are preferable, so that individuals are involved in decisions about the support they receive and have maximum control over their lives. It also recognises the deficits within national care systems in dealing with persons with disabilities and the need for a person-centered approach. A major transformation is needed to incorporate a wellbeing perspective to care for persons with disabilities. This reform  should take into account four multifaceted conceptual models: health promotion, mental capital, social inclusion and recovery. The person-centered integrative diagnosis (PID) model may provide a useful framework to better understand the existing relationship among these models. Integrative care addressed to persons with disabilities should also incorporate wellbeing improvement or sustainability as a major endpoint.

Article Details

Issue
Vol. 2 No. 1 (2012)
Section
The Person with Disease at the Center of Teaching
Author Biography

Luis Salvador-Carulla, University of Cadiz; and Spanish Association for Research on Healthy Ageing (AECES)

Dr Luis Salvador-Carulla is professor of Psychiatry at the University of Cadiz (Spain). He has been member of the Advisory Board on disability and dependency of the regional government of Catalonia (Spain) and he is member of the advisory committee of the national strategy on Mental Health at the Ministry of Health and Social Policy. His field of interest is integrated support decision systems and policy in long-term care. He is honour member of the World Psychiatry Association and secretary of its section “Classification, Diagnostic assessment and Nomenclature”. He is also President of the PSICOST research association, and the Spanish Association on Scientific Research on Healthy Aging (AECES), as well as Vice-president of the Spanish Society of Epidemiological Psychiatry (SEEP). Dr. Salvador-Carulla has intensively participated in the development of international research networks in the fields mentioned as well as in social inclusion, person centered medicine, healthy ageing and bridging and knowledge transfer between the fields of disability and ageing. He has also collaborated with the European Commission (EC) and the World Health Organisation  (WHO) as external advisor. He coordinated the European Commission project eDESDE-LTC for the development of an European coding system for long term care, and he participates now on the EC project Refinement for analysing financing, quality and effectiveness of mental health systems in Europe. He chairs the WHO working group on the classification of intellectual disabilities at chapter V of the International Classification of Diseases (ICD-11).

References

United Nations. (2006) Convention on the Rights of Persons with Disabilities. Geneva, United Nations, (http://www2.ohchr.org/english/law/ disabilities-convention.htm, accessed 16 May 2009).

World Health Organization and The World Bank. (2011). World Report on Disability. Geneva: World Health Organization.

Mezzich, J.E., Salloum, I.M., Cloninger, C.R., Salvador-Carulla, L., Kirmayer, L.J., Banzato, C.E., Wallcraft, J. & Botbol, M. (2010). Person-centred integrative diagnosis: conceptual bases and structural model. Canadian Journal of Psychiatry 55 (11) 701-708.

Salloum, I.M. & Mezzich, J.E. (2011). Outlining the bases of person-centred integrative diagnosis. Journal of Evaluation in Clinical Practice 17 (2) 354-356.

World Health Organization. (2010). Key components of a well functioning health system. Geneva: WHO Health System http://www.who.int/healthsystems/EN_HSSkeycomponents.pdf Accessed January 12, 2012.

World Health Organization Western Pacific Office. (2007). People-centered care: A policy framework. WHO – Western Pacific Region. http://www.wpro.who.int/NR/rdonlyres/55CBA47E-9B93-4EFB-A64E21667D95D30E/0/PEOPLECENTREDHEATLHCAREPolicy Framework.pdf. Accessed January 12, 2012.

Edgren, L. (2008). The meaning of integrated care: A systems approach. International Journal of Integrated Care 8, e68.

Institute of Medicine. (2001). Crossing the quality chasm: A new health system for the 21st Century. Washington, DC: National Academies Press.

U.S. Presidential Commission on Mental Health. (2003). Achieving the Promise: Transforming Mental Health Care in America. Final Report. DHHS Pub N: SMA-03-3832. Rockville, Maryland: Department of Health and Human Services.

World Health Organization European Office. (2005). WHO European Ministerial Conference on a Mental Health Action Plan for Europe: Facing the Challenges, Building Solutions. Helsinki, Finland, 12-15 January 2005. EUR/04/5047810/7, 2005.

Department of Health. (2009). New Horizons: A Shared Vision for Mental Health. London: Department of Health, United Kingdom.

Wallcraft, J., Steffen, S. & Amering M. (2011). Service User and Family Perspectives on Psychiatry for the Person. International Journal of Person-Centered Medicine 1 (1) 152-154.

World Health Organization. (2004). Promoting mental health: concepts, emerging evidence, practice : summary report / a report from the World Health Organization, Department of Mental Health and Substance Abuse in collaboration with the Victorian Health Promotion Foundation (VicHealth) and the University of Melbourne. Geneva, WHO.

Mezzich, J.E., Snaedal, J. & Van Weel, C. & Heath, I. (2010). Introduction to Conceptual Explorations on Person-centered Medicine. International Journal of Integrated Care 10, e002.

Hosman, C., Jané-Llopis, E. & Saxena, S. (Eds). (2005). Prevention of Mental Disorders: Effective Interventions and Policy Options. Oxford: Oxford University Press.

European Commission. (2008). Mental Health in the EU – Key Facts, Figures, and Activities:A Background Paper. Directorate General for Health and Consumers. Luxembourg: European Commission.

Mrazek, P.J. & Haggerty, R.J. (Eds). (1994). Reducing risks for mental disorders: Frontiers for preventive intervention research. Washington DC: National Academy Press.

Pirkola, S., Sund, R., Sailas, E. & Wahlbeck, K. (2009). Community mental-health services and suicide rate in Finland: a nationwide small-area analysis. Lancet 373 (9658) 147-153.

Perry, J., Linehan, C., Kerr, M., Salvador-Carulla, L., Zeilinger, E., Weber, G., Walsh, P., van Schrojemstein Lantman-de-Valk, H., Haveman, M., Azema, B., Buono, S., Cara, A.C., Germanavicius, A., Van Hove, G., Määttä, T., Berger, D.M. & Tossebro, J. (2010). The P15 – a multinational assessment battery for collecting data on health indicators relevant to adults with intellectual disabilities. Journal of Intellectual Disability Research 54 (11) 981-991.

Haveman, M., Perry, J., Salvador-Carulla, L., Walsh, P.N., Kerr, M., van Schrojemstein Lantman-de-Valk, H., Van Hove G., Berger, D.M., Azema, B., Buono, S., Cara, A.C., Germanavicius, A., Linehan, C., Määttä, T., Tossebro, J. & Weber, G. (2011). Ageing and health status in adults with intellectual disabilities: results of the European POMONA II study. Journal of Intellectual & Developmental Disability 36 (1) 49-60.

Martínez-Leal, R., Salvador-Carulla, L., Linehan, C., Walsh, P., Weber, G., Van Hove, G., Määttä, T., Azema, B., Haveman, M., Buono, S., Germanavicius, A., van Schrojemstein Lantman-de-Valk, H., Tossebro, J., Carmen-Cara, A., Berger, D.M., Perry, J. & Kerr, M. (2011). The impact of living arrangements and deinstitutionalisation in the health status of persons with intellectual disability in Europe. Journal of Intellectual Disability Research 55 (9) 858-872.

Beddington, J., Cooper, C.L., Field, J., Goswami, U., Huppert, F.A., Jenkins, R., Jones, H.S., Kirkwood, T.B., Sahakian, B.J. & Thomas, S.M. (2008). The mental wealth of nations. Nature 455 (7216) 1057-1060.

Cooper, C.L., Goswani, U. & Sahakian, B.J. (2009). Mental capital and wellbeing. Oxford: Wiley and Blackwell.

Jenkins, R., Meltzer, H., Bebbington, P., Brugha, T., Farrell, M., McManus, S. & Singleton N. The British Mental Health Survey Programme: achievements and latest findings. Social Psychiatry and Psychiatric Epidemiology 44 (11) 899-904.

Huxley, P. & Thornicroft, G. (2003). Social inclusion, social quality and mental illness. British Journal of Psychiatry 182, 289-290.

Crawford C. (2003), Towards a common approach to thinking about and measuring social inclusion. Roeher Institute.

National Social Inclusion Programme (NSIP). (2009). Vision and Progress: Social Inclusion and Mental Health. http://www.socialinclusion.org.uk/publications/NSIP_Vision_and_Progress.pdf

European Communities. (2009). Joint Report on Social Protection and Social Inclusion. Summary: Social inclusion, pensions, healthcare and long-term care. Luxembourg: Publications Office of the European Union. http://www.google.es/search?q=Joint+Report+on+social+inclusion+European+2009&hl=es&sourceid=gd&rlz=1D1GGLD_esES334ES342

World Health Organisation. (2010). Community-based rehabilitation: CBR guidelines. Towards Community-based Inclusive Development. Geneva: WHO.

Anthony, W.A. (1993). Recovery from mental illness. The guiding vision of the mental health service systems in the 1990s. Psychosocial Rehabilitation 16, 11-23.

Anthony, W.A. (2004). The principle of personhood: The field’s transcendent principle. Psychiatric Rehabilitation Journal 27 (3) 205.

Steffen, S. (2011). European Federation of Associations of Families of People with Mental Illness initiatives on person-centred care. Journal of Evaluation in Clinical Practice 17 (2) 345-346.

Griffiths, C.A. (2009). The EMILIA project: The impact of a lifelong learning intervention on the sense of coherence of mental health service users. International Journal of Psychosocial Rehabilitation 14 (1) 35-49.

Griffiths, C. A. & Ryan, P. (2008). Recovery and Lifelong Learning: Interrelated Processes. International Journal of Psychosocial Rehabilitation 13 (1) 51-56.

Le Boutillier, C., Leamy, M., Bird, V.J., Davidson, L., Williams, J. & Slade, M. (2011). What does recovery mean in practice? A qualitative analysis of international recovery-oriented practice guidance. Psychiatry Services 62 (12) 1470-1476.

Holloway, F. (2005). The Forgotten Need for Rehabilitation in Contemporary Mental Health Services. http://www.rcpsych.ac.uk/pdf/frankholloway_oct05.pdf

Care Services Improvement Partnership, Royal College of Psychiatrists & Social Care Institute for Excellence. (2007). A Common Purpose: Recovery in Future Mental Health Services (Joint Position Paper 08). Social Care Institute for Excellence. http://www.scie.org.uk/publications/positionpapers/pp08.pdf

Mental Health Commission. (2008). The Recovery Journey. A Recovery Approach Within Irish Mental Health Services (Position Paper). Dublin: Mental Health Commission. http://www.mhcirl.ie/documents/publications/A%20Framework%20for%20Development%20A%20Recovery%20Approach%20Within%20the%20Irish%20Mental%20Health%20Services%202008.pdf

Rodriguez, J. (2007). La atención de Salud Mental en América Latina y el Caribe. Revista de Psiquatría Uruguaya 71 (2) 117-124.

Organización Mundial de la Salud. (2008). Derechos Humanos y Salud. Personas con discapacidad mental. OMS. http://www.paho.org/spanish/dd/pub/10069_Discap_mental.pdf